tag:blogger.com,1999:blog-2573618333909462861.comments2014-04-17T07:02:44.720-07:00Plan BThe Freelandshttp://www.blogger.com/profile/12633351395573628412noreply@blogger.comBlogger15125tag:blogger.com,1999:blog-2573618333909462861.post-85430628468853092542012-10-15T23:01:01.395-07:002012-10-15T23:01:01.395-07:00Hi, My name is Stewart and i was diagnosed with MS...Hi, My name is Stewart and i was diagnosed with MS at age 19. I am now 27, living in NSW Australia. For as far as i can remember back i haven't really liked doctors. The biggest reason being they (doctors, BIG Pharma etc. So add that to a deep denial i found myself in for sometime, yrs. I haven't had to endure the abuse of mainstream medicine :) Also i must note that when i started or was going to start whatever treatments i just do my own head in and believe somewhat brings some side effects on, compared to those who dont over think about things. Anyway moving along. <br /><br />My MS has been some what aggressive over the last 5 yrs give or take. I tried Rebif but only lasted like 2 months, fatigue was a really big problem already from the MS and the Rebif was just impossible as Rebif causes just that more fatigue! So at that time i think i was like 23 (give or take) there was not much more they can do. How ever long after i was going to be apart of a worldwide test study for fingolimod. Again those who know about the drug are unsettling and for me mentally was hard. But never the less i was still willing and was going ahead with taking part in the test, that was till the study was cancelled for my region!!<br /><br />So only thing they had was Tysbari. Now this one made me laugh. 1 in 1000 chance of becoming a vegetable or die!!! WTF are you guys kidding me or what lol!!! Yes to me this was totally iNsaNE! I didnt care what else they said there was just no way. Then i had a relapse that started to really affect my walking could still walk but was struggling was admitted to hospital and given a course of prednisone, which also had a course of before and felt not bad for 1-2 yrs. I have recently asked my Nuros at the brain and mind institute in Sydney for some kind of scheduled dose of prednisone say every 2yrs seeing i felt pretty good, but as they explained to me prednisone is not preventative. I have been away from doctors for around a year and now have gone back. They offered the same old sht except what do you know fingolimod was available for all and i started finishing her sentences off and she now knew i knew a lot about it. With Fingolimod the side effect that i was and still am doing my head over is the whole watching the amount of sunlight i have and always having to put sun lotion everyday. But now i have began the same old process and very close to backing out. <br /><br />So now that i have gone far too deep and a bit off track i will get to this water cure which is still very new to (3 days).<br /><br />Pre 3 days ago some MS symptoms are: Pins n needles in my hands, balance, urinating feels impossible, stool being affected could go without for over a week without even trying, fatigue from the heat.<br /><br />Fastforward 3 days of just water and half a tsp of sea salt and pins n needles in my right hand has nearly gone! while the worse of the two hand the left has improved considerably. My urinating is back better then i can ever remember. And my stool is back to 1-2 releases a day :)As for the rest time will tell, and i am pretty sure i am not doing properly and yet it still is working for me. I am so grateful for this information. I will be bookmarking all the pages i post on and update my progress cause the water cure right now to me seems like it should be common knowledge... Thank you again to all <3 <br /><br />PS <br />sorry for long story and my inability to take proof ready serious lolAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2573618333909462861.post-80798604587662962702011-01-04T02:49:35.506-08:002011-01-04T02:49:35.506-08:00Thanks for posting your blog. I appreciate your ho...Thanks for posting your blog. I appreciate your honesty and willingness to help others through your experiences.<br />Any updates you can share?Jason Bhttps://www.blogger.com/profile/00728072414204740960noreply@blogger.comtag:blogger.com,1999:blog-2573618333909462861.post-77341213976650944642010-06-25T22:56:34.273-07:002010-06-25T22:56:34.273-07:00So many people got seafood allergy i have this all...So many people got seafood allergy i have this allergy and i can eat fish just like that let me tell you i need my pill every time i get seafood is sad .buy generic viagrahttp://www.originalonlinepharmacy.com/noreply@blogger.comtag:blogger.com,1999:blog-2573618333909462861.post-78494767999769055032010-05-06T09:11:01.945-07:002010-05-06T09:11:01.945-07:00I wish you the best in the world I'm doing som...I wish you the best in the world I'm doing some research work any additional information I will givebuy generic viagrahttp://www.xlpharmacy.com/noreply@blogger.comtag:blogger.com,1999:blog-2573618333909462861.post-81751992159704353822009-08-28T07:17:46.287-07:002009-08-28T07:17:46.287-07:00Hello! Just discovered you all. Reading backwards ...Hello! Just discovered you all. Reading backwards you intrigued me with your comments about thyroid and MS. "Long ago" (Pre-MS) my wife Patti had her thyroid removed after a diagnosis of Graves Disease and daily Synthroid replaced the body's natural way. It could not have been more than a year or two that her diagnosis of "probable MS" first appeared, until 1989 when MS kicked down the door and became part of our life. <br /><br />Caregivingly Yours, Patrick<br />http://caregivinglyyours.blogspot.com/Anonymoushttps://www.blogger.com/profile/14000299655117252000noreply@blogger.comtag:blogger.com,1999:blog-2573618333909462861.post-17867190489283007622009-05-10T09:36:00.000-07:002009-05-10T09:36:00.000-07:00My name is Bob Butts of the water cure. I have ne...My name is Bob Butts of the water cure. I have never seen a single person with MS who didn't do one or more of the following which wrecks one's immune system. Uses too much caffeine, alcohol or soda and/or too little water or unprocessed sea salt.<br />thbe reason the water cure works so well is that people with MS are deficient in one or more of the aforementioned. view the TV news specials of it on watercure2.org. we sell nothing nor will accept anything. be happy to help you.<br />Bob ButtsAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2573618333909462861.post-68940839608331445922008-12-01T20:29:00.000-08:002008-12-01T20:29:00.000-08:00Yeah, it seems like a lot of craziness lately. Th...Yeah, it seems like a lot of craziness lately. The dr. said that even the LDN won't work properly if Ed's thyroid is that out of control. I personally think food sensitivities play a larger role in health than most people realize as well.bridgetfreeland24https://www.blogger.com/profile/07740985518477213089noreply@blogger.comtag:blogger.com,1999:blog-2573618333909462861.post-42870365114394109802008-11-30T17:03:00.000-08:002008-11-30T17:03:00.000-08:00That's a good question about the thyroid, and one ...That's a good question about the thyroid, and one I plan on asking on my visit to the PCP on Tuesday. I don't know anymore, is it good news when a test shows nothing, or is it a lost opportunity at a possible cause? Anyway, congrats that nothing jumped out at ya as a problem?awbhttps://www.blogger.com/profile/05029157758859447422noreply@blogger.comtag:blogger.com,1999:blog-2573618333909462861.post-45826590422962146102008-11-25T13:00:00.000-08:002008-11-25T13:00:00.000-08:00I'm interested to see what you find out about the ...I'm interested to see what you find out about the food allergies, I'm convinced that's where the answer is. Good luck with all of it, I'm still trying to get off the downhill slide, we shall see!awbhttps://www.blogger.com/profile/05029157758859447422noreply@blogger.comtag:blogger.com,1999:blog-2573618333909462861.post-69157073028780637302008-10-09T21:05:00.000-07:002008-10-09T21:05:00.000-07:00Hey awb!Well, honestly, things are good on LDN, an...Hey awb!<BR/>Well, honestly, things are good on LDN, and we had to expect the worst I guess. It is NOT turning everything around...but no progression and some improvement, no side effects, so far its been great!The Freelandshttps://www.blogger.com/profile/12633351395573628412noreply@blogger.comtag:blogger.com,1999:blog-2573618333909462861.post-2697592590991637072008-10-09T02:46:00.000-07:002008-10-09T02:46:00.000-07:00That's great to hear. I had a choice of LDN and v...That's great to hear. I had a choice of LDN and vitamin D therapy and I chose the D. You are making me wonder if I made the right choice? I hope it continues for you.awbhttps://www.blogger.com/profile/05029157758859447422noreply@blogger.comtag:blogger.com,1999:blog-2573618333909462861.post-1610736068589191832008-09-10T16:46:00.000-07:002008-09-10T16:46:00.000-07:00Thanks! So far so good...Thanks! So far so good...The Freelandshttps://www.blogger.com/profile/12633351395573628412noreply@blogger.comtag:blogger.com,1999:blog-2573618333909462861.post-44921548330141527022008-09-10T11:44:00.000-07:002008-09-10T11:44:00.000-07:00That's great, I hope it all continues to get bette...That's great, I hope it all continues to get better!awbhttps://www.blogger.com/profile/05029157758859447422noreply@blogger.comtag:blogger.com,1999:blog-2573618333909462861.post-86807030835924804892008-09-05T13:05:00.000-07:002008-09-05T13:05:00.000-07:00Hi Bridget,I'm a fellow MSer. Well at least fello...Hi Bridget,<BR/><BR/>I'm a fellow MSer. Well at least fellow to your hubbie. But I think spouses count as they too live with our disease.<BR/><BR/>I have no experience with LDN but will be interested in reading about yours. I blog at <A HREF="http://brassandivory.blogspot.com/" REL="nofollow">Brass and Ivory</A> as well as write at <A HREF="http://www.healthcentral.com/multiple-sclerosis/c/19065" REL="nofollow">Health Central</A>.<BR/><BR/>I hope to see you around the blogosphere. WelcomeLisa Emrichhttps://www.blogger.com/profile/10862232056342347990noreply@blogger.comtag:blogger.com,1999:blog-2573618333909462861.post-75469798415985752952008-09-05T07:42:00.000-07:002008-09-05T07:42:00.000-07:00I wish you both all the luck in the world. I'm st...I wish you both all the luck in the world. I'm still looking for a doctor to prescribe the LDN. Neither of the neuros at U of MD medical center or Johns Hopkins will go near it, no clinical trials. I was 26 when this all started, just hoping to catch a break! Take care, and I will revisit the water cure, thanks.awbhttps://www.blogger.com/profile/05029157758859447422noreply@blogger.com