Thursday, November 27, 2008

Interesting...

I read somewhere that thyroid dysfunction is common in people with MS, Ed has even been on thyroid meds before, but his blood test results showed some pretty big problems. While this is not a huge surprise because a lot of autoimmune diseases (lupus, Grave's) can be linked back to the thyroid, I am curious as to why this has not become an issue until 4 years after his initial attack. Regardless, Ed does not have CPN, and his blood tests showed low levels of allergy to pretty much every food category, but ultimately his thyroid functioning is off the charts (in lack of production of the thyroid hormone, otherwise known as hypothyroidism). LDN can apparently ease side-effects of hypothyroidism (though not proven so far), and the doctor prescribed a high dosage of thyroid medication (synthroid).
I guess the ultimate questions are whether or not the thyroid is the main source of Ed's MS attacks, and why he would suffer from a thyroid dysfuction. I have gotten the impression in some past research that this is a 'chicken or egg' matter in regards to whether or not thyroid problems are a cause, or rather a result of MS's effect on the body. Who knows, maybe the body just reacts that way after MS attacks for a purpose, or maybe it is an undefined side-effect of drug treatments so far. I would be interested in hearing whether or not anyone has an opinion about those thoughts.

Friday, November 21, 2008

Doctor appt.

Ed's appointment with his doctor is actually next wednesday (26th), so it will be another week before we know anything about his blood tests. Otherwise, I am optimistic about the fact that he has not had any relapses so far, and I look forward to tracking (hopefully) more progress in the next few months now that he has almost hit the three month mark on LDN.

Monday, November 17, 2008

4.5 mgs

The doctor upped the LDN dosage to 4.5 mg. Initially (from the beginning), my legs felt stronger, but lately it has been off and on - somedays I feel good and some days I don't. The higher dosage is giving me really strange and vivid dreams. I haven't had any 'relapses' or major issues. A couple weeks ago I was tested for food allergies and CPN (chlymadia pneunomiae - see www.cpnhelp.org). I will find out the results this week. I have also been looking into heavy metal poisoning as the origin of my MS. Regardless if LDN works great or not, we are still trying to find the actual cause of the disease.
-Ed