Thursday, July 2, 2009
LDN was not a miracle drug for Ed, but we will continue to document his experiences for those who are following and are interested in the things that we do try out.
Thursday, March 12, 2009
Ed did stop taking the thyroid meds for about a month after the last post, and his body fell into a bad state. Unfortunately, he was busy and failed to renew his prescription, so I am also thinking that his thyroid is upset...(as was I when I found out ;P). Regardless, he is back on the medication.
Tuesday, January 20, 2009
Monday, December 29, 2008
Thursday, November 27, 2008
I guess the ultimate questions are whether or not the thyroid is the main source of Ed's MS attacks, and why he would suffer from a thyroid dysfuction. I have gotten the impression in some past research that this is a 'chicken or egg' matter in regards to whether or not thyroid problems are a cause, or rather a result of MS's effect on the body. Who knows, maybe the body just reacts that way after MS attacks for a purpose, or maybe it is an undefined side-effect of drug treatments so far. I would be interested in hearing whether or not anyone has an opinion about those thoughts.
Friday, November 21, 2008
Monday, November 17, 2008
Monday, October 20, 2008
Wednesday, October 8, 2008
Sunday, September 21, 2008
Tuesday, September 9, 2008
Thursday, September 4, 2008
My husband, Ed, suffered an acute Multiple Sclerosis attack in 2005 (at the age of 27), 4 months after our son was born, which left him paralyzed from the waist down. He received a firm diagnosis a few months later. While it appears to run in his family, we were told by neurologists at the Mayo Clinic in Minnesota that MS is NOT known to be hereditary, though I have heard otherwise. For example, a recent article published in Forbes Magazine claims that there are "two genes associated with autoimmune disorders, HLA-DR2 and HLA-DR4..." which are "found in 65% to 75% of all MS patients..." There are many theories on MS, but it seemed to us that the origins of this enigmatic disease will only be found at the end of a rainbow...
So, here we are, obviously not doctors, but people simply curious to find a solution other than the options that he has been given. After a few years on Rebif, and a few relapses, Ed informed me that his treatments were not working any longer. He was tired, and I knew that his lack of control over the situation was ultimately frustrating and saddening him. We had really tried a lot of things. As previously mentioned, we sat at the Mayo Clinic for several days only to be told that we should continue to "maintain" his state, meaning no more progression, and yet we still had no solution for that except pure chance and hope (faith even?)....
We tried acupuncture, vitamins/supplements, diets, reiki and even colonic-irrigation. (I was sooo ready to accept this procedure as an all encompassing solution to every disease/problem, that it would work miracles as people have claimed online, but unfortunately we were left $200 lighter with an uncomfortable experience and a silent car ride home.)
While we had done some previous research on Low Dose Naltrexone, we knew that he could not be on Rebif at the same time; the two drugs would counteract each other. The transition period would possibly leave him at risk for a major relapse. Months later though, it no longer seemed to matter. The current treatments were not working. I finally sat down and did more research on LDN, as well as "The Water Cure," which I had heard about several years ago. The testimonies seemed unreal. It appeared that everyone (and I mean every single testimony anywhere online) made claims that Naltrexone, FDA approved to treat heroin addiction - in low-doses - stops the progression of multiple sclerosis and, in many cases, helps sufferers regain lost functioning.
[If you have MS or another disease and are interested in LDN or the water cure, I recommend that you do your research and decide for yourself. This blog has two links on the side bar to start you out.]
It was difficult to find someone to prescribe LDN - though it has no side effects and apparently has a high success rate in halting the progression of MS - but we definitely found a doctor who is very enthusiastic. Neither one of his neurologists would get involved. He first began the 'Water Cure' and started the LDN once the prescription arrived in the mail.
Over the next few months/years/decades we will post his experiences with LDN and the "Water Cure." I strongly encourage you to visit the websites and decided for yourself if either one is right for you. While we found great information online about MS and LDN, we have not found anyone tracking their experience. MS is such a day to day thing, uncertain and scary as well, that we thought it would be a good idea to walk others through Ed's transitions by posting updates on a regular basis.